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UK Epilepsy and Pregnancy Register


The UK Epilepsy and Pregnancy Register

Subject Keywords: Registry for pregnant women with epilepsy
Topic: Chronic Conditions
Rare Disease
Rare Diseases
Chronic Conditions
Catalogue: Data
Primary Data Sources
Type: Database
Region: Northern Ireland
United Kingdom

The UK Epilepsy and Pregnancy register was established in 1996 for pregnant women in the UK.

The major objective of the register is to obtain and publish information on the frequency of major malformations, such as heart defect, spina bifida and cleft lip, among infants whose mothers take one or more antiepileptic drugs (AEDs) to prevent seizures.

Women with epilepsy who become pregnant, whether or not they are on treatment for epilepsy, are eligible to join the register. 

Details collected includes maternal information (Date of birth, expected delivery date), medical history, epilepsy history (seizure types, Anti-epileptic drug (AED) Treatment), folic acid details, GP details, whether smoker or not, if attending a specialist clinic for epilepsy.



Rights: © The UK Epilepsy and Pregnancy Register
Suggested citation:

The UK Epilepsy and Pregnancy Register. (2012) UK Epilepsy and Pregnancy Register [Online]. Available from: [Accessed: 18th November 2019].


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