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The National Haemophilia Database


United Kingdom Haemophilia Centre Doctors' Organisation (UKHCDO)

Subject Keywords: Haemophilia Database
Topic: Chronic Conditions
Rare Disease
Rare Diseases
Chronic Conditions
Catalogue: Data
Primary Data Sources
Type: Database
Region: Northern Ireland
United Kingdom

The National Haemophilia Database (NHD) is a register of patients with bleeding disorders living in the UK, originally established in Oxford in 1968. This database collects data from haemophilia centres. Every quarter Haemophilia Centres are required to submit information to the NHD about the treatment issued to patients, including products delivered to the patient’s home. Information collected includes:

  1. Patient information
  2. Specific information for haemophilia A and B (Family history of an inhibitor in a first degree relative, Malignancy diagnosed, Auto-immune disease diagnosed, Interferon received)
  3. Treatment details
  4. Visitor information
  5. Product usage per diagnosis

The United Kingdom Haemophilia Centre Doctors' Organisation (UKHCDO) is required by the Department of Health to collect data on diagnosis, management and complications of bleeding disorders. This information is kept in the NHD which is managed by the Data Management Working Party of UKHCDO.




Rights: © United Kingdom Haemophilia Centre Doctors' Organisation
Suggested citation:

United Kingdom Haemophilia Centre Doctors' Organisation (UKHCDO). (2012) The National Haemophilia Database [Online]. Available from: [Accessed: 18th November 2019].


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