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CRANE Database


Cleft Development Board

Subject Keywords: Cleft lip and palate database
Topic: Chronic Conditions
Rare Disease
Rare Diseases
Chronic Conditions
Catalogue: Data
Primary Data Sources
Type: Database
Region: Northern Ireland
United Kingdom

The CRANE database is a record of information about children born with cleft lip and palate in England, Wales and Northern Ireland. The CRANE Database can be considered a continuation of the Craniofacial Anomalies Register (CARE) that since 1990 was maintained by the Craniofacial Society of Great Britain and Ireland (CFSGBI).

The CRANE database is funded by the National Health Service through the Specialist Service Commissioners, who have responsibility for the care of children born with cleft lip and palate. An independent body, the Cleft Development Board, which represents patient groups, clinicians and commissioners, has the overall responsibility for running the database. The information is held on a computer, located at the Royal College of Surgeons in London. Cleft teams enter data on to CRANE electronically via the web.

The database holds information such as:

  • Details of the type of cleft the child was born with.
  • Patient name, address, and postcode.
  • Whether there is a history of cleft lip or palate in the family.
  • Other diagnoses such as heart conditions and kidney problems that might be relevant to care.
  • Details and dates of operations, including the name of the surgeon.
  • Details of records collected for audit measurements such as speech and hearing tests that are relevant to cleft lip or palate care.



Rights: © CRANE
Suggested citation:

Cleft Development Board. (2012) CRANE Database [Online]. Available from: [Accessed: 21st November 2019].


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