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CRANE Database

Cleft Development Board Cleft lip and palate database The CRANE database is a record of information about children born with cleft lip and palate in England, Wales and Northern Ireland. The CRANE Database can be considered a continuation of the Craniofaci ...

Cystic Fibrosis Registry of Ireland

Cystic Fibrosis Registry of Ireland Cystic fibrosis Register The Cystic Fibrosis Registry of Ireland (CFRI) has been in operation since 2001. The CFRI was established to keep relevant medical records of each patient with cystic fibrosis in a central compu ...

European Organisation for Rare Diseases (EURORDIS)

European Organisation for Rare Diseases (EURORDIS) Rare diseases EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people ...

European Surveillance of Congenital Anomalies (EUROCAT)

EUROCAT Epidemiological, Surveillance, Congenital anomalies EUROCAT is a European network of population-based registries for the epidemiologic surveillance of congenital anomalies. Established in 1979, EUROCAT now surveys more than 1.7 million births per ...

Genetic and Rare Disorders Organisation (GRDO)

Genetic and Rare Disorders Organisation (GRDO) Genetic disorder, Rare disorders The Genetic and Rare Disorders Organisation (GRDO) is a non governmental organisation acting as a national alliance for voluntary groups representing the views and concerns of ...

Health Protection Surveillance Centre

Health Protection Surveillance Centre (HPSC) Communicable diseases The Health Protection Surveillance Centre (HPSC) is Ireland's specialist agency for the surveillance of communicable diseases. HPSC is part of the Health Service Executive and works i ...

Health Service Executive Newborn Hearing Screening Programme

Health Service Executive (HSE) Screening, Hearing, Newborn baby In the South and South East of Ireland (Cork University Maternity Hospital, Wexford General and Waterford Regional Hospitals) parents of all babies born are offered a hearing screen for their ...

Irish Childhood Diabetes National Register

The Adelaide and Meath Hospital (AMNCH) incorporating the National Children’s Hospital, Tallaght; Trinity Centre for Health Sciences Childhood Type 1 Diabetes Register A prospective national diabetes register was commenced on Jan 1st 2008 to monitor epide ...

Irish Epilepsy and Pregnancy Register

Beaumont Hospital Epilepsy Research Group & Royal College of Surgeons in Ireland (RSCI) DRUG, EPILEPSY, PREGNANCY The Irish Epilepsy and Pregnancy Register was set up in 2001 for pregnant women with epilepsy in Ireland. The aim of this Register is to ...

Irish Heart & Lung Transplant Programme Database

National Centre for Cardiothoracic Surgery, Mater Misericordiae University Hospital, Dublin Heart, Lung, Transplant, Database Since April 1999 the Department of Health have funded a heart/lung and lung transplant programme based at the Mater Hospital in D ...

Irish Motor Neurone Disease Register

National Motor Neurone Disease Clinic, Beaumont Hospital Motor Neurone Disease Register The Irish Register of Motor Neurone Disease (MND) includes all known patients diagnosed with MND each year. It dates back to 1994 and it now has clinical information f ...

National Alpha-1 Antitrypsin Deficiency Registry

Alpha One Foundation National Alpha-1 Patient Registry The national alpha-1 antitrypsin deficiency (Alpha-1) registry was established in 2007 to collect information on Alpha-1 individuals throughout Ireland. The registry is a confidential database that re ...

National Cancer Registry Ireland

National Cancer Registry Ireland (NCRI) Cancer Registry The Irish National Cancer Registry was set up in 1991 and began collecting comprehensive cancer information for the whole population of the Republic of Ireland in 1994. CRI collects cancer data for t ...

National Centre for Inherited Metabolic Disorders

National Centre for Inherited Metabolic Disorders Screening, Inherited Disorder, Metabolic Disorders, Disability The National Centre for Inherited Metabolic Disorders is located at the Children's University Hospital, Temple St. It is the tertiary car ...

National Centre for Medical Genetics (NCMG)

National Centre for Medical Genetics (NCMG) Genetics The National Centre for Medical Genetics seeks to provide a comprehensive service for all patients and families in the Republic of Ireland affected by or at risk of a genetic disorder. The Centre, under ...

National Centre for Medical Genetics 5 Year Report 2007- 2011

National Centre for Medical Genetics (NCMG) Genetics This comprehensive report provides an insight into the specialist work carried out in the National Centre for Medical Genetics (NCMG) between 2007 and 2011. The data was compiled by nominated staff memb ...

National Cleft Database

Dublin Cleft Centre (DCC) and members of the multidisciplinary team from Children's University Hospital Temple Street, Our Lady's Hospital Crumlin, St James Hospital, Cork University Hospital National Cleft Database The National Cleft Database m ...

National Haemophilia Register

National Centre for Hereditary Coagulation Disorders (NCHCD) National Haemophilia Register TheNational Haemophilis Register, is a national register for all patients with haemophilia and related bleeding and clotting disorders. Interfaced to St. James' ...

National Hepatitis C Database

Health Protection Surveillance Centre National Hepatitis C Database Hepatitis C infection is a major cause of liver disease and it is estimated that up to 20% of people with chronic infection will develop cirrhosis over a 20 to 25 year period.  Approximat ...

National Newborn Bloodspot Screening Register

Health Service Executive (HSE) Newborn Bloodspot Screening (NBS) Register The National Newborn Bloodspot Screening Programme (NNBSP) screens all newborn babies for six conditions soon after birth, to ensure that any baby with one of these rare conditions ...