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Primary data sources

Young Hearts Study

Northern Ireland Centre for Diet and Health (NICHE) Risk factors for cardiovascular disease in young people The Young Hearts (YH) Project is an ongoing study of biological and behavioural risk factors for cardiovascular disease in a representative sample ...

Northern Ireland Cancer Waiting Times: October, November and December 2013

Department of Health, Social Services and Public Safety (DHSSPSNI) Cancer services waiting times The release gives details of the waiting times for patients accessing cancer services at hospitals in Northern Ireland during the months of October, November ...

National Cancer Drug Management Programme

National Cancer Control Programme (NCCP), Health Service Executive Demographic data, drug use data, financial data The National Cancer Drug Management Programme coordinates and manages the use of cancer drugs nationally. A key component of the programme i ...

WHO European Childhood Obesity Surveillance Initiative (COSI): Ireland

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CoHeart

Research Datasets held by the Discipline of General Practice, NUI Galway Secondary preventive care, Ischaemic heart disease The aim of the study was to assess the effectiveness of secondary preventive care of ischaemic heart disease amongst a cohort of pa ...

Eating for Health? A survey of Attitudes, Awareness and Eating Habits among Adults in Northern Ireland

Health Promotion Agency (HPA) ADULT, ATTITUDE, CHILD, DIET, EATING HABIT, NUTRITION, OBESITY, OVERWEIGHT, YOUNG PEOPLE In autumn 1999, the HPA, as part of its work on the Food and Nutrition Strategy, commissioned research to obtain information on eating p ...

Northern Ireland Children’s Type 1 Diabetes Register

School of Medicine and Dentistry, Queen's University of Belfast CHILD, DIABETES MELLITUS In Northern Ireland, a Type 1 diabetes register has prospectively recorded newly diagnosed children aged <15 years since 1989. The register is estimated (usin ...

National Centre for Inherited Metabolic Disorders

National Centre for Inherited Metabolic Disorders Screening, Inherited Disorder, Metabolic Disorders, Disability The National Centre for Inherited Metabolic Disorders is located at the Children's University Hospital, Temple St. It is the tertiary car ...

Health Service Executive Newborn Hearing Screening Programme

Health Service Executive (HSE) Screening, Hearing, Newborn baby In the South and South East of Ireland (Cork University Maternity Hospital, Wexford General and Waterford Regional Hospitals) parents of all babies born are offered a hearing screen for their ...

Irish Heart & Lung Transplant Programme Database

National Centre for Cardiothoracic Surgery, Mater Misericordiae University Hospital, Dublin Heart, Lung, Transplant, Database Since April 1999 the Department of Health have funded a heart/lung and lung transplant programme based at the Mater Hospital in D ...

National Newborn Bloodspot Screening Register

Health Service Executive (HSE) Newborn Bloodspot Screening (NBS) Register The National Newborn Bloodspot Screening Programme (NNBSP) screens all newborn babies for six conditions soon after birth, to ensure that any baby with one of these rare conditions ...

National Centre for Medical Genetics (NCMG)

National Centre for Medical Genetics (NCMG) Genetics The National Centre for Medical Genetics seeks to provide a comprehensive service for all patients and families in the Republic of Ireland affected by or at risk of a genetic disorder. The Centre, under ...

CRANE Database

Cleft Development Board Cleft lip and palate database The CRANE database is a record of information about children born with cleft lip and palate in England, Wales and Northern Ireland. The CRANE Database can be considered a continuation of the Craniofaci ...

Severe Chronic Neutropenia International Registry (SCNIR)

Severe Chronic Neutropenia International Registry Neutropenia register Neutropenia is a blood disorder, in which the number of neutrophils (white blood cells) in the blood is too low. The Severe Chronic Neutropenia International Registry (SCNIR) was estab ...

The National Haemophilia Database

United Kingdom Haemophilia Centre Doctors' Organisation (UKHCDO) Haemophilia Database The National Haemophilia Database (NHD) is a register of patients with bleeding disorders living in the UK, originally established in Oxford in 1968. This database ...

UK Cystic Fibrosis Registry

Cystic Fibrosis Trust Cystic Fibrosis Registry The UK Cystic Fibrosis Registry tracks the health of people with CF throughout the UK; its primary purpose is to help drive up the standard of clinical care. In 2007 the Cystic Fibrosis Trust implemented the ...

UK Epilepsy and Pregnancy Register

The UK Epilepsy and Pregnancy Register Registry for pregnant women with epilepsy The UK Epilepsy and Pregnancy register was established in 1996 for pregnant women in the UK. The major objective of the register is to obtain and publish information on the f ...

UK Renal Registry (UKRR)

UK Renal Registry (UKRR) Renal disease registry The UK Renal Registry (UKRR) is a resource for the development of patient care in renal disease. It was established by the Renal Association with support from the Department of Health, the British Associatio ...

National Pulmonary Hypertension Unit Database

Centre for Lung Health Pulmonary arterial hypertension register Pulmonary arterial hypertension includes a group of diseases incorporating Idiopathic Pulmonary Arterial Hypertension (IPAH) and PAH related to various underlying medical conditions.  With th ...

Northern Ireland Newborn Hearing Screening Programme Database

Public Health Agency (PHA) Database on newborn hearing screening The current newborn hearing screening programme in Northern Ireland, which has been in place since October 2005, is offered to all newborn infants. The aim of the screening programme is to r ...