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Primary data sources

Young Hearts Study

Northern Ireland Centre for Diet and Health (NICHE) Risk factors for cardiovascular disease in young people The Young Hearts (YH) Project is an ongoing study of biological and behavioural risk factors for cardiovascular disease in a representative sample ...

National Poisons Information Centre Database

National Poisons Information Centre (NPIC) Poisons Information The main function of the National Poisons Information Centre is to provide information to doctors and healthcare professionals, to assist them in the management of acute poisonings. The Nation ...

Small Area Population Statistics (SAPS)

Central Statistics Office (CSO) Small area population statistics Small Area Population Statistics (SAPS) data are available at a variety of spatial scales. The most important types of area include: • Counties and County Boroughs (i.e. major urban areas); ...

National Newborn Bloodspot Screening Register

Health Service Executive (HSE) Newborn Bloodspot Screening (NBS) Register The National Newborn Bloodspot Screening Programme (NNBSP) screens all newborn babies for six conditions soon after birth, to ensure that any baby with one of these rare conditions ...

National Centre for Medical Genetics (NCMG)

National Centre for Medical Genetics (NCMG) Genetics The National Centre for Medical Genetics seeks to provide a comprehensive service for all patients and families in the Republic of Ireland affected by or at risk of a genetic disorder. The Centre, under ...

CRANE Database

Cleft Development Board Cleft lip and palate database The CRANE database is a record of information about children born with cleft lip and palate in England, Wales and Northern Ireland. The CRANE Database can be considered a continuation of the Craniofaci ...

Severe Chronic Neutropenia International Registry (SCNIR)

Severe Chronic Neutropenia International Registry Neutropenia register Neutropenia is a blood disorder, in which the number of neutrophils (white blood cells) in the blood is too low. The Severe Chronic Neutropenia International Registry (SCNIR) was estab ...

The National Haemophilia Database

United Kingdom Haemophilia Centre Doctors' Organisation (UKHCDO) Haemophilia Database The National Haemophilia Database (NHD) is a register of patients with bleeding disorders living in the UK, originally established in Oxford in 1968. This database ...

UK Cystic Fibrosis Registry

Cystic Fibrosis Trust Cystic Fibrosis Registry The UK Cystic Fibrosis Registry tracks the health of people with CF throughout the UK; its primary purpose is to help drive up the standard of clinical care. In 2007 the Cystic Fibrosis Trust implemented the ...

UK Epilepsy and Pregnancy Register

The UK Epilepsy and Pregnancy Register Registry for pregnant women with epilepsy The UK Epilepsy and Pregnancy register was established in 1996 for pregnant women in the UK. The major objective of the register is to obtain and publish information on the f ...

UK Renal Registry (UKRR)

UK Renal Registry (UKRR) Renal disease registry The UK Renal Registry (UKRR) is a resource for the development of patient care in renal disease. It was established by the Renal Association with support from the Department of Health, the British Associatio ...

National Pulmonary Hypertension Unit Database

Centre for Lung Health Pulmonary arterial hypertension register Pulmonary arterial hypertension includes a group of diseases incorporating Idiopathic Pulmonary Arterial Hypertension (IPAH) and PAH related to various underlying medical conditions.  With th ...

Northern Ireland Newborn Hearing Screening Programme Database

Public Health Agency (PHA) Database on newborn hearing screening The current newborn hearing screening programme in Northern Ireland, which has been in place since October 2005, is offered to all newborn infants. The aim of the screening programme is to r ...

Northern Ireland Newborn Screening Programme Database

Public Health Agency (PHA) Database on newborn screening In the first week after birth, all babies in Northern Ireland are offered screening ('heel prick test') for a range of inherited conditions including phenylketonuria (PKU), congenital hypo ...

'What's Left' Tracker Index/Fix Your Finances Project

Irish League of Credit Unions Household expenditure The Irish League of Credit Unions has launched its 2012 ‘What’s Left’ tracker index. Carrying on from 2011, the tracker will record household expenditure, how much disposable income Irish people have thi ...

Northern Ireland Cancer Waiting Times: October, November and December 2013

Department of Health, Social Services and Public Safety (DHSSPSNI) Cancer services waiting times The release gives details of the waiting times for patients accessing cancer services at hospitals in Northern Ireland during the months of October, November ...

Alcohol Hand Rub Consumption Monitoring

Health Protection Surveillance Centre (HPSC) Alcohol hand rub, hand hygiene, infection control, surveillance Surveillance of consumption of alcohol-based hand washing gels in acute hospitals. Data from entire facility in litres per each quarter supplied t ...

HSE Performance Reports – Acute Hospitals including Clinical Programmes, National Ambulance Service and National Cancer Control Programme

HSE- Planning, Performance and Business Information Unit Acute, activity, inpatient discharges, day cases, emergency presentations, inpatient admissions, bed utilisation, births, beds The Planning, Performance and Business Information Unit collates the HS ...

HSE Performance Reports – Health and Wellbeing and Governance

HSE- Planning, Performance and Business Information Unit Health, wellbeing, child health development screening, tobacco control, food safety, health inequalities, Immunisation and vaccines, healthcare associated infections The Planning, Performance and Bu ...

HSE Performance Reports – Mental Health Services

HSE- Planning, Performance and Business Information Unit Mental health, general adult mental health, psychiatry of old age, community child and adolescent mental health, child and adolescent mental health The Planning, Performance and Business Information ...