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National Centre for Medical Genetics (NCMG)

National Centre for Medical Genetics (NCMG) Genetics The National Centre for Medical Genetics seeks to provide a comprehensive service for all patients and families in the Republic of Ireland affected by or at risk of a genetic disorder. The Centre, under ...

Health Protection Surveillance Centre

Health Protection Surveillance Centre (HPSC) Communicable diseases The Health Protection Surveillance Centre (HPSC) is Ireland's specialist agency for the surveillance of communicable diseases. HPSC is part of the Health Service Executive and works i ...

Genetic and Rare Disorders Organisation (GRDO)

Genetic and Rare Disorders Organisation (GRDO) Genetic disorder, Rare disorders The Genetic and Rare Disorders Organisation (GRDO) is a non governmental organisation acting as a national alliance for voluntary groups representing the views and concerns of ...

Orphanet

Orphanet Portal for rare diseases and orphan drugs Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases. O ...

European Organisation for Rare Diseases (EURORDIS)

European Organisation for Rare Diseases (EURORDIS) Rare diseases EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people ...

Rare Disease Day

Rare Disease Day Partners Rare diseases Rare Disease Day is an annual awareness-raising event co-ordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the national level.   Chronic Conditions Conditions Ra ...