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CRANE Database

Cleft Development Board Cleft lip and palate database The CRANE database is a record of information about children born with cleft lip and palate in England, Wales and Northern Ireland. The CRANE Database can be considered a continuation of the Craniofaci ...

The National Haemophilia Database

United Kingdom Haemophilia Centre Doctors' Organisation (UKHCDO) Haemophilia Database The National Haemophilia Database (NHD) is a register of patients with bleeding disorders living in the UK, originally established in Oxford in 1968. This database ...

UK Cystic Fibrosis Registry

Cystic Fibrosis Trust Cystic Fibrosis Registry The UK Cystic Fibrosis Registry tracks the health of people with CF throughout the UK; its primary purpose is to help drive up the standard of clinical care. In 2007 the Cystic Fibrosis Trust implemented the ...

UK Epilepsy and Pregnancy Register

The UK Epilepsy and Pregnancy Register Registry for pregnant women with epilepsy The UK Epilepsy and Pregnancy register was established in 1996 for pregnant women in the UK. The major objective of the register is to obtain and publish information on the f ...

UK Renal Registry (UKRR)

UK Renal Registry (UKRR) Renal disease registry The UK Renal Registry (UKRR) is a resource for the development of patient care in renal disease. It was established by the Renal Association with support from the Department of Health, the British Associatio ...

Northern Ireland Newborn Hearing Screening Programme Database

Public Health Agency (PHA) Database on newborn hearing screening The current newborn hearing screening programme in Northern Ireland, which has been in place since October 2005, is offered to all newborn infants. The aim of the screening programme is to r ...

Northern Ireland Newborn Screening Programme Database

Public Health Agency (PHA) Database on newborn screening In the first week after birth, all babies in Northern Ireland are offered screening ('heel prick test') for a range of inherited conditions including phenylketonuria (PKU), congenital hypo ...

UK Strategy for Rare Diseases (PDF 1.88MB)

UK Strategy for Rare Diseases 10.14655/799178-799401 Department of Health, Social Services and Public Safety health, population, northern ireland, government, Strategies and Action Plans UK Strategy for Rare Diseases Rare Diseases Policy Policies, Strateg ...

Northern Ireland Cancer Registry (NICR)

Centre for Public Heath, Queen's University Belfast Cancer registry The Northern Ireland Cancer Registry was re-established in May 1994 under an agreement between The Public Health Agency (PHA) and Queen's University of Belfast. The Registry is ...