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Severe Chronic Neutropenia International Registry (SCNIR)

Severe Chronic Neutropenia International Registry Neutropenia register Neutropenia is a blood disorder, in which the number of neutrophils (white blood cells) in the blood is too low. The Severe Chronic Neutropenia International Registry (SCNIR) was estab ...

Orphanet

Orphanet Portal for rare diseases and orphan drugs Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases. O ...

Rare Disease Day

Rare Disease Day Partners Rare diseases Rare Disease Day is an annual awareness-raising event co-ordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the national level.   Chronic Conditions Conditions Ra ...